photo of woman and man with subtle smiles
photo of woman and man with subtle smiles
photo of woman and man with subtle smiles

Your journey matters. Share your rare disease story with us.

This storytelling project aims to help raise awareness of multifocal motor neuropathy (MMN) and myositis by engaging those who live with these rare diseases and their caregivers. Now you can build upon the community’s collective voice as you tell your unique story.

Start to build understanding of your rare disease by selecting it below.

photo of the same man from above

MMN

Multifocal motor neuropathy

photo of same woman from above

Myositis

Each story makes an impact.
Help us amplify your voice.

By sharing your unique journey, you can help us amplify a fuller range of life experiences within the rare disease community. We’re here to listen.

Share your story with us