photo of woman with a subtle smile
photo of woman with a subtle smile
photo of woman with a subtle smile

Help raise myositis awareness—no matter your subtype. Make your voice heard.

Your journey with myositis matters and every subtype is different. Share the resources, information, and support you want to receive as you navigate your myositis journey. Tell us how you want to be supported.

Each story makes an impact. Help us amplify yours.

You are more than your rare disease diagnosis. Tell your myositis story to help others feel heard while living with this rare disorder. By sharing your journey and how your subtype of myositis has affected you, you can help raise awareness and inspire others to tell their stories. 

photo of a woman with a subtle smile
photo of a woman with a subtle smile
photo of African American woman with subtle smile

Your voice matters.

We want to support you on your myositis journey—regardless of subtype. Make your voice heard. We want to know which myositis-related information and resources would mean the most to you.

photo of a man and woman in an embrace
photo of a man and woman in an embrace
photo of a man and woman in an embrace

Read stories from the myositis community.

Learn about the firsthand experiences of myositis community members.

photo of man with beard, looking somber
photo of man with beard, looking somber
photo of man with beard, looking somber

Do you want to learn more about myositis and get community updates?

Sign up to receive myositis information, updates, and content.