Your journey matters. Share your myositis story with us.

You are more than your myositis diagnosis. You are a dynamic person who wants the most out of life, but myositis challenges—like muscle weakness and fatigue—may be a struggle. Spread awareness and understanding of myositis by sharing your story with us.

Let your story be told

Each story counts. Help us amplify your voice.

This storytelling project aims to raise awareness of myositis, through engaging and connecting with those living with this condition and with those who care for them. Now you can build upon the community’s collective voice as you share your myositis story. Please use one of the prompts below to help you get started or choose a topic that speaks to you.

Don’t want to share your story but interested in future communications about myositis?

Have you experienced muscle weakness because of your myositis diagnosis?

Tell us about the effects that myositis symptoms like muscle weakness has on your physical and emotional health.

Tell us your story

What matters for you since your myositis diagnosis?

Tell us what is truly important to you now.

Tell us your story

What are your experiences supporting someone with myositis?

Tell us how you support your friend, family member, or loved one who has myositis.

Tell us your story

Share your myositis story with us

Thank you! Please provide your information below.

*indicates required field

First Name*

Last Name*

Email Address*

Which of these best describes you?*

Share story radio I have myositis I care for a loved one who has myositis I know someone who has myositis

Opt ins I am 18 years of age or older*

I authorize argenx US, Inc. (“argenx”), its affiliates, and companies working with argenx to use my contact information and health information (“information”) to contact me by direct mail, email, telephone, and autodialed text message for marketing purposes, such as to provide me with information, offers, and promotions regarding myositis, argenx products, and programs, to conduct market research or surveys, and to use my information to develop future products, services, and programs.

I understand that I may withdraw my authorization provided above by emailing privacy@argenx.com or following the unsubscribe instructions on the communication. Unless I withdraw this authorization, it will remain effective for 2 years. Copies of this authorization may be obtained by emailing privacy@argenx.com.

Thank you, #firstName#! We hear you.

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