Your voice can make an impact and help us support the myositis community!

How has myositis affected your life? Share your myositis story to help us raise awareness and understanding.

Your story can inspire. Whether you live with myositis or care for a loved one who has this rare disease, consider sharing your experience navigating myositis symptoms, your subtype and diagnosis.

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Which of these options best describes you?*

Share story radio

Are you willing to be featured in an argenx article that is shared with the myositis community?*

Share story radio

Thank you for sharing your response. Please provide your information below to receive myositis-related content and stay informed about other opportunities to get involved.

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Thank you for sharing your story, #firstName#! How do you want to be supported?

As you navigate your myositis journey, what information and resources would be meaningful to you? Answer the 5 questions below to help us understand how we can help you and the myositis community.

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Select all the myositis-related topics that you’re interested in learning more about*

Myositis-related topics


Select all the options for how you prefer to receive information about myositis*

Receive information about Myositis


Select all the people who currently support you on your myositis journey*

people who support your Myositis journey


What types of myositis-related events would you be interested in participating in?*

Myositis-related events


Select all the topics that would be important for you to receive information and support navigating*

Select important myositis topics

We hear you! Thanks for sharing your myositis story.

By sharing your myositis journey, you’re helping us raise awareness and understanding about this rare disease. Explore stories submitted by other members of the myositis community.

Read myositis community stories

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