Your Journey Matters. Share Your Rare Disease Story With Us.

This storytelling project aims to help raise awareness of CIDP, ITP, and Pemphigus by engaging those who live with these rare diseases and their caregivers. Now you can build upon the community’s collective voice as you tell your unique story.

Start to build understanding of your rare disease by selecting it below.


Immune Thrombocytopenia


Pemphigus Vulgaris and Pemphigus Foliaceus


Chronic Inflammatory Demyelinating Polyneuropathy

Each Story Makes an Impact.
Help Us Amplify Your Voice.

By sharing your unique journey, you can help us amplify a fuller range of life experiences within the rare disease community. We’re here to listen.

Share your story with us